Children and adults with profound and multiple learning disabilities (PMLD) are, like everyone else, unique individuals.
But sometimes it is helpful to talk about groups of people:
- who have common concerns
- who have distinctive needs
- who face barriers to being included
- who need help to fight for their equal rights.
People with profound and multiple learning disabilities:
- have more than one disability
- have a profound learning disability
- have great difficulty communicating
- need high levels of support with most aspects of daily life
- may have additional sensory or physical disabilities, complex health needs or mental health difficulties
- may have behaviours that challenge us.
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Raising our Sights
Mencap and the PMLD Network have produced a series of how-to guides and films to help local areas meet the needs of people with profound and multiple learning disabilities (PMLD), funded by the Department of Health.
The guides are aimed at families, commissioners and anyone responsible for supporting or developing services for people with PMLD. You can download the guides for free below.
What is Raising our Sights?
In 2010, Professor Jim Mansell published a report called Raising our sights, which looked at services and support for people with PMLD. In the report, Professor Mansell outlined what needed to change to improve the lives of people with PMLD. These how-to guides focus on his key recommendations.
10 how-to guides
The ten guides below cover different topics and show you how to:
- recognise good services and support for people with PMLD
- challenge and campaign where people with PMLD are not getting the right support
- make these changes happen if you're a commissioner, including checklists for commissioners on each topics.
6 accompanying films about PMLD
The six films accompany some of the guides and illustrate the importance of making these changes. They also highlight the impact that the right support can have on the lives of people with PMLD and their families.
Raising our sights
Download the report Raising our Sights: services for adults with profound intellectual and multiple disabilities, written by Professor Jim Mansell.Download resource
Download the guides
How-to guide 1: advocacy
This guide to advocacy will help local areas implement the Raising our Sights recommendations, and understand and meet the advocacy needs of people with profound and multiple learning disabilities (PMLD).Download resource
How-to guide 3: communication
This communication guide is aimed at a national level and focuses on what ‘good’ looks like and what needs to be in place to meet the communication needs of people with PMLD.Download resource
How-to guide 4: health
This health guide will help commissioners in local areas implement the recommendations from the report and understand and meet the health needs of people with PMLD.Download resource
How-to guide 8: training the workforce
This guide to training the workforce will help local areas focus on what ‘good’ looks like and what needs to be in place to ensure that we have the right staff to support people with PMLD and their families.Download resource
How-to guide 9: what people do in the day
This guide aims to make sure people with PMLD and their families are able to access meaningful and interesting activities in places where their needs can be met.Download resource
How-to guide 11: commissioning
This guide is aimed at commissioners and other people responsible for planning and commissioning health and social care services at a local level. It will also be useful for organisations that provide health or social care services for people with PMLD.Download resource
How to get the support you need
Phone or email our Mencap Direct Team for guidance and information about what support we can offer you.
Or why not take a look at FamilyHub? This is our online community for parents and family carers of people with a learning disability, and is a place for sharing experiences, advice and support.