People with profound and multiple learning disabilities Easy Read

People with profound and multiple learning disabilities (PMLD)

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Why do we need to use the words 'profound and multiple learning disabilities' to talk about a certain group of people?

A man pointing to himself.

People with profound and multiple learning disabilities are individuals just like everyone else. But they often have needs that other people do not have. 

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If we find out what these needs are we can do more to support people with profound and multiple learning disabilities. 

Other people often do not listen to what people with profound and multiple learning disabilities want and need. 

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What does 'profound and multiple learning disabilities' mean?

People with profound and multiple learning disabilities have more than 1 disability. 

A support worker sits in front of a woman in a wheelchair, drinking coffee together.

Their main disability is a profound learning disability . This means they need lots of support. 

A manual wheelchair.

They might have other disabilities as well like:

  • Physical disabilities. This is a disability to do with the body. People who use a wheelchair have a physical disability .
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  • Sensory disabilities. This is when people find it difficult to see or hear.
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  • Lots of health problems.
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  • Mental health problems.
     
  • Autism
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People with profound and multiple learning disabilities need a lot of support. They also find it very difficult to communicate.

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How do people with profound and multiple learning disabilities communicate?

People with profound and multiple learning disabilities communicate in lots of different ways. Each person communicates in the way that is best for them. 

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Some of the ways people might communicate:

  • Using their face. People might show you how they feel by moving or changing their face.
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  • Making a noise. People might show you how they feel by making a noise. Or they might make a noise to make you notice something. 
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  • Using their body. People might show you how they feel by using their body. For example a person might lean towards something that they want. 
A woman kneels in front of a woman in a wheelchair who is upset and has thrown a mug with liquid in it
  • Changing their behaviour. People might show you how they feel by the way they behave. 
    For example, they might push over a table, or throw a cup if they are angry. 
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  • Using speech, symbols or signs. 
A woman smiling and looking at a girl in a wheelchair

Most people with profound and multiple learning disabilities find it difficult to understand what other people say. 

It is important to spend time getting to know each person and the way that they communicate. 

A woman is choosing to do music rather than painting

It is also important to find out what helps the person to understand things. 

One way is to show someone an object to remind them of something they do often. 

For example, if the person likes art you could show them a paint brush or a picture to tell them that they could do some art later if they wanted. 

Other things someone with profound and multiple learning disabilities need support with:

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Physical support

This means support with using their body. 

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  • Many people with profound and multiple learning disabilities need to use a wheelchair. 
     
  • Some people might need special equipment to help their body stay straight. Equipment is something that helps you do things more easily. 
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  • If someone has physical disabilities they could have physiotherapy. 
    Physiotherapy is where someone called a Physiotherapist helps you move your body more easily. 
A lady helping a lady with a walking frame by a car.
  • There are lots of other people who are paid to support people to use their body more easily. For example Occupational therapists help people learn skills and get the right equipment. 
     
  • Carers of people with profound and multiple learning disabilities must have training so they can help the person they care for in the right way. 
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Health support

This means support with feeling well. 

people with a learning disability pointing to an NHS care leaflet
  • People with profound and multiple learning disabilities often need lots of support with their health.
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  • Many people have Epilepsy. 
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  • Some people needs lots of support when they swallow food. This is important as everyone needs food to stay healthy. 
     
  • Some people might get food through a tube. 
     
  • Some people may need a carer to use equipment to take liquid out of their throat so that they don’t choke.
A boy sitting on a chair leaning forwards with his arms folded and looking as if he is in pain.
  • Someone with profound and multiple learning disabilities might find it difficult to tell you if they are in pain. They may need support to know that they are in pain and to make the pain better. 
A photograph of a man with his hands raised, with a question mark on his Tshirt. Over his picture are pictures of the same man in different positions

Support with behaviour

This means understanding why people act the way they do. 

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  • Some people might behave in a way that other people find difficult. 
    This might be because they are not getting enough help and support. 
A woman is kneeling down listening to a man in a wheelchair who is talking
  • It is important to understand what people’s behaviour means. 
    They might behave in a certain way because they are not feeling well or because they do not like the place that they are in. 
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  • It is possible that people with profound and multiple learning disabilities might have more mental health problems than other people. 

    People with mental health problems need the right help and support. 
A carer is helping a man with a walking stick to get to the toilet

Personal support

  • Most people will need support with personal care. For example, with washing or going to the toilet. 
A woman getting dressed, a man helping another  man to drink from a cup and a man holding up a toothbrush and toothpaste
  • People with profound and multiple learning disabilities will also need help with things like eating and doing things that they enjoy everyday. 
     
  • People should have support to help them tell other people what they want and need. 
A woman is helping a young girl with her school work

Learning support

This is support to help people learn new things. 

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  • People with profound and multiple learning disabilities will carry on learning things all their lives, just like anyone else. People will learn things slowly and will learn things a bit at  a time. 
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  • It helps someone learn how to do things if someone else shows them how to do the same thing lots of times. 
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  • Some of the things people learn are things that other people might learn when they are young.  
    For example, learning how to press a button to make something happen.
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Equal rights

Often people with profound and multiple learning disabilities are not treated the same way as other people. 

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  • Other people do not understand that they have the same rights as everyone else. 
     
  • Other people need to understand that people with profound and multiple learning disabilities can make their own choices and do things that they enjoy just like everyone else.