Jon Sparkes, OBE, chief executive of Mencap, said:  “This Call for Evidence is a vital opportunity for people with a learning disability , their families and support networks to have their say on how PIP should work better for the very people it’s intended to support.

“PIP is a lifeline for many people with a learning disability. It helps cover the unavoidable additional costs that come with a learning disability that lasts a lifetime and often requires support with many aspects of daily life.

“At Mencap, we regularly hear from people who are being let down by this system. Inaccessible application forms and barriers to communicating needs to assessors mean people with a learning disability are not always getting the support they are entitled to.

“By listening to people with a learning disability, the Timms Review has a real chance to make this right.”

Note to editors

About Mencap

There are 1.5 million people with a learning disability in the UK and they deserve to live their life to the full. So Mencap supports people with a learning disability to succeed in the things that matter to them. To ensure that people with a learning disability are not left behind at any stage of their life, we campaign for a fairer society; work with families and partners to build inclusive communities; and we deliver person-centred services. We’ve spent 80 years changing lives. Now, with Mencap 2030, we’re changing the future. 

What is a learning disability?     

A learning disability is a reduced intellectual ability which affects someone for their whole life. Typically, people with a learning disability need more time to learn and process information. They may need extra support to develop skills, complete tasks and interact with others, or they may have more complex needs requiring round-the clock care. The level of support needed is different for everyone and may change during a person’s lifetime.

Learning disability is NOT a mental illness or a learning difficulty. Often, the term ‘learning difficulty’ is wrongly used in place of ‘learning disability’. Having a learning difficulty (such as ADHD or dyslexia ) may mean a person learns at a different pace or in a different way BUT – unlike a learning disability - it does not affect a person’s intellect.

With the right support, most people with a learning disability can lead happy, healthy, independent lives. At Mencap, it’s our mission to remove societal barriers and shatter misconceptions to make this more possible for more people.

Mencap’s guide to reporting on Learning Disability 

When it comes to creating content with people with a learning disability, we know many people feel nervous about saying and doing the wrong thing. Our guide for journalists, covers everything from up-to-date facts and figures to the right language to use. It also includes tips on how to work with people with a learning disability to gather the best content.

For further information, please contact Mencap’s media team on: [email protected] or 02076 965414 (including out of hours). 

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