Mencap's response to the delayed LeDeR report

Responding to a report in the media about the delay to the publication of the LeDeR annual report , chief executive of learning disability charity Mencap, Jon Sparkes OBE, said:

‘This delay in sharing the findings and lessons from this critical report is disappointing and worrying. 

‘On average, people with a learning disability are dying 23 years earlier than the general population.  

‘LeDeR has made significant progress in reversing this awful statistic since the programme launched in 2015, so why are the latest findings being so delayed? 

‘We urge the Government to treat this with the urgency it deserves and not shy away from the uncomfortable truth that for many years the healthcare system has failed people who are already marginalised in so many ways.’

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For further information, please contact Mencap’s media team on: [email protected] or 02076 965414 (including out of hours). 

Note to editors

About Mencap

Mencap exists to ensure the UK is the best place in the world for people with a learning disability to live happy and healthy lives. We support people directly and campaign with people with a learning disability, their families and carers. We work to change laws, increase representation and campaign for better health, social care and employment opportunities for the 1.5 million people with a learning disability in the UK.

What is a learning disability?     

  • A learning disability is a reduced intellectual ability which affects someone for their whole life. Typically, people with a learning disability need more time to learn and process information. They may need extra support to develop skills, complete tasks and interact with others, or they may have more complex needs requiring round-the clock care. The level of support needed is different for everyone and may change during a person’s lifetime.
  • Learning disability is NOT a mental illness or a learning difficulty. Often, the term ‘learning difficulty’ is wrongly used in place of ‘learning disability’. Having a learning difficulty (such as ADHD or dyslexia ) may mean a person learns at a different pace or in a different way BUT – unlike a learning disability - it does not affect a person’s intellect.
  • With the right support, most people with a learning disability can lead happy, healthy, independent lives. At Mencap, it’s our mission to remove societal barriers and shatter misconceptions to make this more possible for more people.

     

Mencap’s guide to reporting on Learning Disability 

When it comes to creating content with people with a learning disability, we know many people feel nervous about saying and doing the wrong thing. Our guide for journalists, covers everything from up-to-date facts and figures to the right language to use. It also includes tips on how to work with people with a learning disability to gather the best content.

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