Mencap responds to CQC’s data on the number of deaths of people with a learning disability notified to the care regulator between 10 April and 15 May 2020.
Edel Harris, Chief Executive of the learning disability charity Mencap, said:
"A 134% increase in the number of reported deaths of people with a learning disability is deeply troubling, especially as many are dying of COVID-19 much younger than the general population.
"The devastating impact of COVID-19 on our community
A community is the people and places in an area. is shocking, but sadly not surprising, when we have long been warning that the healthcare rights
Rights are the things everyone should be allowed to do like have a say, or go to school. of people with a learning disability are under threat like never before. Throughout this crisis, we have repeatedly challenged discriminatory healthcare guidance
Guidance means being given clear instructions to be able to do something well. and practice, and we continue to support people with a learning disability and their families to access the treatment and support they have a right to.
"While we welcome Public Health England’s move to bring together data on deaths of people with a learning disability from COVID-19 across health, care and community settings, it must be completed and released as soon as possible so that steps can be taken to address any potentially discriminatory practice now before further lives are lost. We’ve been telling the Government
The Government are the people who run the country. The Government decide how much tax
Tax is the money that pays for things like schools, hospitals and the police. There are different types of taxes like income tax
Income tax is the money that is taken out of the money you earn every month. It helps to pay for things we all need like hospitals and schools. , VAT
VAT is also called Value Added Tax. VAT is the extra money you pay when you buy things. The money goes to the government to pay for things like schools and hospitals. and council tax
Council
A council is also called a local authority
A local authority is also called a council. They are a group of people who make decisions about some of the things in the area where you live like schools, social care
Social care means the services that give care and support to people who need it. (support for people), parks and dustbin collection. . They are a group of people who make decisions about some of the things in the area where you live. These include: schools, social care (support for people), parks and dustbin collection. Tax is the money that people pay to the council
A service gives people what they need, like healthcare services that help people when they are ill, and support services that give people support. ( NHS
The NHS is the National Health Service. The NHS gives free healthcare to everyone in the UK and includes things like your GP (doctors) surgery and hospitals. ) should work. for weeks that it is putting people with a learning disability at risk by not giving them priority testing; it’s time the Government acted to make sure that everyone who needs social care, regardless of their age, disability or care setting, is prioritised for testing. This is a matter of life or death, yet people with a learning disability continue to be forgotten."
Contact CQC’s press office for the full report: www.cqc.org.uk/news/stories/cqc-publishes-data-deaths-people-learning-disability
-ENDS-
For further information,contact Mencap’s media team on: media@mencap.org.uk or 020 7696 5414 (including out of hours).
For advice and information on learning disability, including advice on coronavirus and healthcare, please contact Mencap’s Freephone Learning Disability Helpline on 0808 808 1111 (9am-3pm, Monday-Friday) or email helpline@mencap.org.uk. Or visit Mencap’s
website
A website is a page you can go to on the internet like Google or YouTube.
: www.mencap.org.uk.
Notes to editors
About Mencap
There is approximately 1.5 million people with a learning disability in the UK. Mencap works to support people with a learning disability, their families and carers by fighting to change laws, improve services and access to
education
Education is when you learn things. When you fill in a form to get a job, education means you write where you went to school, college or university.
,
employment
Employment means having a job.
and
leisure
Leisure is when you have time to do things you enjoy like playing sports or going to the pub.
facilities.
Mencap supports thousands of people with a learning disability to live their lives the way they want and also campaigns to change laws, improve services and challenge negative attitudes towards people with a learning disability.
Visit www.mencap.org.uk.
Treat Me Well Campaign
In 2018, Mencap launched our Treat Me Well campaign to help save lives and to transform how the NHS treats people with a learning disability in hospital.
It is estimated 1,200 people with a learning disability die avoidably every year when timely access to good quality care could have saved them. While people with a learning disability die on average over two decades younger than people without a learning disability.
Over ten years after Mencap highlighted the issue of people with a learning disability dying avoidably, Mencap’s Treat me well campaign is working with healthcare professionals and campaigners to change that.
Working alongside healthcare professionals and campaigners like Paula McGowan, mother to Oliver McGowan who died in hospital, the Treat me well campaign has succeeded in securing
mandatory
Mandatory means that something must be done.
learning disability training for all health professionals which will be named in honour of Oliver and will be piloted shortly.
Simple changes in hospital care can make a big difference – better communication, more time and clearer information.
But we know the treatment that people with a learning disability get in hospital is still not good enough in many parts of the country. This has to change.
Our Treat me well campaign is working with healthcare professionals and campaigners to make sure people with a learning disability are treated equally in hospital and get the healthcare they need and have a right to which can help to save lives.
What is a learning disability?
- A learning disability is a reduced intellectual ability which can cause problems with everyday tasks – for example shopping and cooking, or travelling to new places – which affects someone for their whole life;
- Learning disability is not a mental illness or a learning difficulty, such as
dyslexia
Dyslexia is a learning difficulty. People who have dyslexia can find it hard to read, write and spell.
. Very often the term ‘learning difficulty’ is wrongly used interchangeably with ‘learning disability’; - People with a learning disability can take longer to learn new things and may need support to develop new skills, understand difficult information and engage with other people. The level of support someone needs is different with every individual. For example, someone with a severe learning disability might need much more support with daily tasks than someone with a mild learning disability.