Relationships are very important to people with a learning disability
Although some people with a learning disability A learning disability is to do with the way someone's brain works. It makes it harder for someone to learn, understand or do things. may not be able to consent Consent is when you say yes to something, like an operation, or Mencap using your photo for a story. You may have to sign something to say yes. If you can't make your own decisions, someone else can say yes or no for you. They must think about what is right for you. to having sex or a relationship, this is the minority.
Generally, if they are given sufficient social support and accessible Accessible means something is easy for people to use or join in with. For example: Accessible writing means the writing is easy to read and understand. sex and relationships Relationships are about the people in your life. You might have different types of relationships like friendships, family relationships, or a boyfriend or girlfriend. education Education is when you learn things. When you fill in a form to get a job, education means you write where you went to school, college or university. , many people with a learning disability are able to engage in safe, healthy and happy personal and sexual relationships (Darragh et al., 2017; Black & Kammes, 2019).
Many people with a learning disability have the same aspirations for loving relationships as those without a learning disability (Lane et al., 2019). The companionship that a partner provides is important to people with a learning disability (Bates et al., 2017a; 2017c; Retzik et al, 2021).
However, there are various barriers to people with a learning disability having the relationships they want. Many people with a learning disability are not given appropriate support needed to engage in loving and sexual relationships with others. (NIHR, 2020).
The role of caregivers and their support
Support workers and family members can play a large role in supporting or preventing people with a learning disability in developing and sustaining relationships (Azzopardi-Lane, 2017; Charitou et al., 2020; Oloidi et al., 2020).
For example, support workers are often a key source of advice as well as emotional and practical support for people with learning disabilities. (NIHR, 2020).
In some cases, support staff have reportedly been instrumental in helping the development of relationships, especially for those with higher support needs (Bates et al., 2017a).
However, evidence suggests some support workers see their role as limited and report a lack of guidance Guidance means being given clear instructions to be able to do something well. on what they can and cannot do or say in regard to supporting sexuality Sexuality is how you feel about yourself and your body. It is about finding out and knowing what feels right for you. (Sitter et al., 2019).
This issue is further exacerbated by tensions between trying to enable positive relationships and trying to protect Protect means keeping someone or something safe. the person with a learning disability from abuse Abuse is when someone bullies you and does or says something to you that makes you feel hurt, upset or scared. or exploitation (Bates et al., 2017b; Maguire et al., 2019).
People with a learning disability can be lesbian, gay, bisexual and transgender (LGBT), just like anyone else
It is important to recognise that people with a learning disability can be lesbian A lesbian is a woman who fancies other women. , gay Gay means a man who fancies other men, or a woman who fancies other women. , bisexual A bisexual is someone who fancies men and women. and transgender Transgender means someone who feels like they have the wrong body. This could be someone who has the body of a man but feels they are a woman, or the other way around. Some people who feel like this have an operation to change their body. .
As such, sex education resources and campaigns for people with a learning disability should be designed with the specific needs of lesbian, gay or bisexual people in mind, rather than assuming that all people with a learning disability are straight (heterosexual) (Wilson et al., 2016; Stoffelen et al., 2018).
Research Research is a way of finding out information which could come from books, or asking people what they think. has found that LGBTQ people with a learning disability face ‘double discrimination Discrimination is when someone is treated differently (usually in a bad way) because of things like their disability or their religion Religion is to do with the things you believe about the world. For example you may believe there is a god or something else. Examples of religions are Christianity, Hinduism, Islam and Judaism. . ’ because of their sexuality or gender (Snell, 2018).
For example, some LGBTQ people with a learning disability are bullied or harassed. In addition, their family members or service staff might not acknowledge their identities or relationships (Dinwoodie et al., 2016; Toft et al., 2019).
Evidence suggests some LGBTQ people with a learning disability have concealed their sexuality to avoid expected negativity (Miller et al., 2019; Bates 2020).
Relationships and Sex Education (RSE)
Information and support to help people with a learning disability to understand their sexuality and have relationships is lacking within many learning disabilities services.
If information and support is given, it may be provided in an unplanned way, be insufficient or inappropriate for people with a learning disability (Reynolds, 2019; Sala et al., 2019).
As a result, people with a learning disability often hold incomplete or inaccurate knowledge of relationships (including LGBTQ relationships), sexual health and the legal and emotional aspects of sex (Whittle & Butler, 2018; Ferrante & Oak; 2020; Spyropoulou, 2020).
Consequently, they are at higher risk of negative sexual experiences, contracting sexually transmitted infections or unwanted pregnancies (Baines et al., 2018).
RSE serves as a way to increase the autonomy of people with a learning disability by equipping them with the tools of knowledge around sex and relationships (Daly et al., 2019).
To do this, RSE must be provided in an appropriate and accessible way. RSE programmes should be designed and developed with people with a learning disability to ensure content is appropriate and accessible (Frawley & O’Shea, 2019).
References
Azzopardi-Lane, C. (2017). Intimate relationships and person with learning disability. Tizard Learning Disability Review, 22(1), 24-27.
Baines, S., Emerson, E., Robertson, J., & Hatton, C. (2018). Sexual activity and sexual health among young adults with and without mild/moderate intellectual disability. BMC Public Health, 18(1), 667.
Bates, C., Terry, L., & Popple, K. (2017a). The importance of romantic love to people with learning disabilities. British Journal of Learning Disabilities, 45(1), 64-72.
Bates, C., Terry L., & Popple, K. (2017b). Supporting people with learning disabilities to make and maintain intimate relationships. Tizard Learning Disability Review, 22(1), 16-23.
Bates, C., Terry, L., & Popple, K. (2017c). Partner selection for people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 30(4), 602-611.
Bates, C. (2020). “It's Nothing to be Ashamed of, I'm Like, I'm Bisexual and I Love Women, I Like Men” - Being a Bisexual Person with an Intellectual Disability. Journal of Bisexuality, 20(4), 493-513.
Black, R., & Kammes, R. (2019). Restrictions, Power, Companionship, and Intimacy: A Metasynthesis of People With Intellectual Disability Speaking About Sex and Relationships. Intellectual and Developmental Disabilities, 57(3), 212-233.
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Daly, A., Heah, R., & Liddiard, H. (2019). Vulnerable Being vulnerable means being at risk of harm, or that you need special care because of your age or disability. subjects and autonomous actors: The right to sexuality education for disabled under-18s, Global Studies of Childhood, 9(3), 235-248.
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National Institute for Health Research (NIHR) (2020). Exploring support for adults with learning disabilities to find loving relationships. (Accessed 14/05/21).
Oloidi, E., Northway, R., & Prince, J. (2020). ‘People with intellectual disabilities living in the communities is bad enough let alone…having sex’: Exploring societal influence on social care workers' attitudes, beliefs and behaviours towards support for personal and sexual relationship needs. Journal of Applied Research in Intellectual Disabilities, 1(2), 122-167.
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