DiGeorge syndrome Easy Read
DiGeorge syndrome
What is DiGeorge syndrome?
DiGeorge syndrome is a condition some people are born with, there is no cure.
DiGeorge syndrome affects everyone differently.
It can cause learning delays or disability, and heart problems.
It can cause problems with eating, talking and hearing.
It may cause shaking and fits.
It makes some people very ill, but others may not know they have it.
Adults with DiGeorge syndrome often live very independent lives.
If you were born with DiGeorge syndrome, you have it for your whole life.
What causes DiGeorge syndrome?
Every person’s body has something called DNA.
DiGeorge syndrome is caused by a small piece missing from your DNA.
This can happen for no reason when a baby is growing.
Where to get help with DiGeorge syndrome
There is no cure for DiGeorge syndrome, but you can get help.
You may find speech therapy helpful.
You may find physiotherapy helpful.
Physiotherapy can be exercises, massage, or other treatments to make you feel better.
Surgery may be needed for bigger problems, like heart problems.
If you or your child has DiGeorge syndrome you should talk to a doctor about getting support.
Max Appeal! give support and advice for people with DiGeorge syndrome, their carers and families.
You can contact the
Learning Disability
A learning disability is to do with the way someone's brain works. It makes it harder for someone to learn, understand or do things.
helpline for more information and support:
- Email: Helpline@mencap.org.uk
- Phone: 0808 808 1111
This
Easy Read
Easy Read is a way of making written information easier to understand. Pictures are usually added next to the writing.
was first published February 2025.
Last updated: 13/02/2025.