Involve Me was a 3 year project about how to creatively involve people with profound and multiple disabilities (PMLD) in decision making.
Involve Me aims to increase the involvement of people with PMLD in decision making and consultation Consultation is finding out what people think about something. . The Involve Me summary booklet and practical guide below are a result of the 3 year project, supported by the Renton Foundation and run by Mencap in partnership with the British Institute of Learning Disability A learning disability is to do with the way someone's brain works. It makes it harder for someone to learn, understand or do things. (BILD).
People with PMLD and staff took part by learning about using different approaches to communication: sharing stories, creative communication, peer advocacy Advocacy is when you get support to have your say. and multimedia advocacy.
Involve Me booklet, practical guide and evaluation
The Involve Me summary booklet is a summary of the different ways of working with people who often get left out because we can find it difficult to understand their communication, or are worried about getting it wrong.
The Involve Me practical guide is the full version, which looks at this in greater depth.
The Involve Me evaluation is an independent report into the project.
The documents pull together what we learned from people working creatively to support communication, understand preferences and involve people with PMLD:
Watch this video about the Involve Me project
Further resources and guides
Here are some guides and resources relevant to involving people with PMLD
People with profound and multiple learning disabilities (PMLD) are, like everyone else, unique individuals.
But, sometimes it's helpful to talk about groups of people who:
- have common concerns
- distinctive needs
- face barriers to be included
- need help to fight for their equal rights Rights are the things everyone should be allowed to do like have a say, or go to school. .
We bring people with PMLD and their families, carers and advocates together with statutory and voluntary agencies. We share good practice, we campaign A campaign is when people work together to try to change something. and we provide information and support.
We want to make sure people with PMLD are fully included in society.
Read the PMLD network definition of profound and multiple learning disabilities:
This gives an overview of who has profound and multiple learning disability (PMLD) and what their needs are.
Intensive interaction is a practical approach to interacting with people with profound and multiple learning disabilities, who do not find it easy communicating or being social.
The BILD PDF factsheet on Intensive interaction explains communication and people with the most complex needs, what works and why this is essential.
Communication and people with the most complex needs
Read Communication and people with the most complex needs: what works best PDF report by Juliet Goldbart and Sue Caton.
Raising Our Sights communication guide
Read the Raising Our Sights PDF guide about communicating with people with PMLD.
Involve Me awareness session plan
The Involve Me awareness PDF session plan provides materials to aid you in your presentation about Involve Me to present to your work or group meeting.
Involve me session plan presentation
The Involve Me session plan PDF presentation can hep you with your presentation about PMLD. You can use this guide for your PowerPoint or slideshow.