People with profound and multiple learning disabilities (PMLD) are, like everyone else, unique individuals.
But, sometimes it's helpful to talk about groups of people who have common concerns and distinctive needs, face barriers to be included and need help to fight for their equal rights.
We bring people with PMLD and their families, carers and advocates together with statutory and voluntary agencies. We share good practice, we campaign and we provide information and support.
We want to make sure people with PMLD are fully included in society.
PMLD guide: Core and essential service standards
Take a look at the Core and essential services standards guide produced by PMLD Link and partners. It is to help ensure people with profound and multiple learning disabilities have access to consistent high-quality support throughout their lives, when supported by any service provider.
This resource is hosted on the PMLD Link website.
Profound Impact Day 2019
On 21 May we celebrated Profound Impact Day, focusing on the issues facing people with profound and multiple learning disabilities (PMLD) in hospital.
We know there are huge issues in hospital with how heathcare professionals involve people with PMLD and their carers in partnership. We want to challenge this and use Profound Impact Day to:
- help healthcare professionals understand the importance of working in partnership with people with PMLD and their supporters, and how to make this happen
- equip people with PMLD and their supporters to feel prepared for a hospital visit and understand their rights in hospital.