Update to privacy notice

To make sure that some of our computer software, or a new idea works the way we want it to, or that our data is up to date, we use a closed database called Test Database

The only people who can use this are the staff that do the testing.

Some of your data is being used in that test environment. This is done via the Legitimate Interest basis under GDPR/DPA18.

The teams involved have recognized that is not the best use of your data and this situation is currently under review.

Companies, like Mencap, often have information about people. 

It is the law that the companies must keep this information safe and secure.

To do this companies must let people know that they have information about them, and how they will use it.

This is called a privacy notice

This page sets out Mencap's privacy notice. It will tell you:

  • why Mencap needs information about you
  • what Mencap does with information about you
  • your rights around how you information is used.

About Mencap

Mencap is a charity and a company.

We are registered with the Information Commissioner's Office (Z5709720).

Information about you that we may keep

Mencap may keep information about you to make sure that our services are safe and professional.

Information also helps us to give the best care and support that we can.

Mencap might keep information such as:

  • your basic details e.g. name, address, date of birth, emergency contact
  • details of how you pay us for your care or funding
  • how we support you
  • your likes and dislikes
  • details about your health.

Mencap might collect, share and store your personal information because:

  • we have an agreement with your or your local council to support you
  • it is the law
  • we have to give information to other organisations that we work with e.g. the Care Quality Commission (the CQC)
  • we want to make our support better for you and other people.

Mencap must follow the law when collecting, storying or sharing information about you.

How we may use your information

Mencap may use your information to:

  • choose the support you might need
  • keep you safe and healthy
  • help you find a job
  • find out what works and what doesn't when it comes to the support you get.

How we keep your information safe

Mencap will always keep your information private and safe.

The only people that we will let see your information are:

  • people with permission
  • people who have the right to see it by law.

People or organisations who may have a legal reason to see your information include:

  • parts of the health and care system, such as your GP, social workers or pharmacy
  • your local council
  • the CQC
  • the police or security services.

How long we will keep your information for

We will only keep your information for as long as it is needed.

The amount of time we keep information for will:

  • be in line with the law and the rules set by other organisations, such as the CQC
  • depend on why it was needed in the first place.

Mencap have a Data Retention Policy. This tells you how long your information is going to be kept for.

Your rights

The information we keep about you is yours.

We will make sure it is kept private and is only used properly.

You have these rights when it comes to your information:

  • You can ask to see a copy of the information we have about you.
  • If you think the information we have about you is wrong, or has parts missing, you can ask us to correct it.
  • If you think we have information about you that is no longer needed you can ask us to delete it (but we won't be able to delete it if the law says it is still needed).
  • You can ask that we stop some of the ways that we use your information, even if you don't want it to be deleted.
  • You can ask us to delete your information by withdrawing consent. Please contact us if you want to do this.
  • You can ask not to use information for legitimate interests. (Legitimate interests are when we have a clear reason or goal for doing something.)

If we cannot do what you have asked the Data Protection Officer will explain why.

How to complain

You can write to our Data Protection Officer if you have questions or you are not happy about the way we use your information.

You can do this yourself or ask someone who supports you to do this for you.

Send a letter to this address:

Data Protection Officer
123 Golden Lane
London
EC1Y 0RT

Or email DPO@mencap.org.uk.

Easy read version

You can download and view a copy of this notice in easy read format.

Download resource Easy read privacy notice for people we support
Easy read version

You can download and view a copy of this notice in easy read format.

Download resource Easy read privacy notice for people we support

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