Jackie O’Sullivan, Executive Director of Strategy and Influence at learning disability charity Mencap, said:  

“Having access to a learning disability nurse can be a matter of life and death.

“A shocking 42% of deaths among people with a learning disability in 2022 were avoidable, mainly because of difficulties accessing care and treatment.  These specialist nurses help people get the care they need, both in hospitals and in the community , and vitally make sure that someone’s learning disability isn’t used as a reason for them to be refused treatment or - in some cases - resuscitation.  

“The NHS England 10-year plan needs to address this current workforce issue which means it is a postcode lottery as to whether people with a learning disability have a learning disability nurse available to them. It should commit to increasing recruitment of these skilled roles.

“People with a learning disability and their loved ones must be able to trust that health services and healthcare professionals are able to understand and meet their needs.”

-ENDS-          
 

For further information or to arrange an interview with a Mencap spokesperson or case study , please contact Mencap’s media team on: media@mencap.org.uk or 02076965414 (including out of hours).        

Notes to editors:  

About  Mencap:    

Mencap exists to ensure the UK is the best place in the world for people with a learning disability to live happy and healthy lives. We support people directly and campaign with people with a learning disability, their families and carers. We work to change laws, increase representation and campaign for better health, social care and employment opportunities for the 1.5 million people with a learning disability in the UK.

What is a learning disability?      

A learning disability is a reduced intellectual ability which affects someone for their whole life. Typically, people with a learning disability need more time to learn and process information. They may need extra support to develop skills, complete tasks and interact with others, or they may have more complex needs requiring round-the clock care. The level of support needed is different for everyone and may change during a person’s lifetime.  

Learning disability is NOT a mental illness or a learning difficulty. Often, the term ‘learning difficulty’ is wrongly used in place of ‘learning disability’. Having a learning difficulty (such as ADHD or dyslexia ) may mean a person learns at a different pace or in a different way BUT – unlike a learning disability - it does not affect a person’s intellect.  

With the right support, most people with a learning disability can lead happy, healthy, independent lives. At Mencap, it’s our mission to remove societal barriers and shatter misconceptions to make this more possible for more people.  

Mencap’s guide to reporting on Learning Disability  

When it comes to creating content with people with a learning disability, we know many people feel nervous about saying and doing the wrong thing. Our guide for journalists, covers everything from up to date facts and figures to the right language to use. It also includes tips on how to work with people with a learning disability to gather the best content.