Jon Sparkes OBE, Chief Executive of learning disability Mencap, says:

“Reports suggesting that critical NHS goals, such as ensuring annual health checks for people with a learning disability, are at risk of being scrapped could have deadly consequences. Even when resources are tight, addressing waiting times and ensuring people with a learning disability are receiving adequate healthcare should never be pitted against each other. There are still so many barriers to people with a learning disability getting the care they deserve, regardless of where they are in the queue for appointments or treatment. People with a learning disability are currently dying, on average, up to 23 years earlier than the general population. Scrapping targets for vital interventions like annual health checks – where existing and potential health conditions can be identified and treated early on - will only make this gap wider.  

"We cannot accept the suggestion that the lives of people with a learning disability are a 'special interest,' there are 1.3 million people with a learning disability in England. Health equity is a human right for all, not a luxury for some. By downgrading these goals, years of progress could be undone, leaving those who already face dying decades earlier than the general population at even greater risk.

"Mencap will unapologetically continue to campaign and work with policy-makers to ensure the 1.3  million people with a learning disability in England are considered in any new proposals for the NHS.”

-ENDS-          
 

For further information or to arrange an interview with a Mencap spokesperson or case study , please contact Mencap’s media team on: media@mencap.org.uk or 02076965414 (including out of hours).        

Notes to editors:  

About  Mencap:    

Mencap exists to ensure the UK is the best place in the world for people with a learning disability to live happy and healthy lives. We support people directly and campaign with people with a learning disability, their families and carers. We work to change laws, increase representation and campaign for better health, social care and employment opportunities for the 1.5 million people with a learning disability in the UK.

What is a learning disability?      

A learning disability is a reduced intellectual ability which affects someone for their whole life. Typically, people with a learning disability need more time to learn and process information. They may need extra support to develop skills, complete tasks and interact with others, or they may have more complex needs requiring round-the clock care. The level of support needed is different for everyone and may change during a person’s lifetime.  

Learning disability is NOT a mental illness or a learning difficulty. Often, the term ‘learning difficulty’ is wrongly used in place of ‘learning disability’. Having a learning difficulty (such as ADHD or dyslexia ) may mean a person learns at a different pace or in a different way BUT – unlike a learning disability - it does not affect a person’s intellect.  

With the right support, most people with a learning disability can lead happy, healthy, independent lives. At Mencap, it’s our mission to remove societal barriers and shatter misconceptions to make this more possible for more people.  

Mencap’s guide to reporting on Learning Disability  

When it comes to creating content with people with a learning disability, we know many people feel nervous about saying and doing the wrong thing. Our guide for journalists, covers everything from up to date facts and figures to the right language to use. It also includes tips on how to work with people with a learning disability to gather the best content.