Jon Sparkes OBE, Chief Executive of learning disability Mencap, says:
“The circumstances of David Lodge’s death are deeply shocking. Having already gone through something as devastating as witnessing his father dying, and remaining with him undiscovered for days on end, David then missed out on the care he so desperately needed in hospital.
“The systemic failings, including a lack of thorough examination and appropriate pain management for David, present in this case are sadly not uncommon for people with a learning disability. Despite being at higher risk for conditions such as pneumonia, they often face inadequate care and missed opportunities for intervention.
"People with a learning disability are currently dying, on average, up to 23 years earlier than the general population and 42% of their deaths are avoidable. It is essential that the
NHS
The NHS is the National Health Service. The NHS gives free healthcare to everyone in the UK and includes things like your GP (doctors) surgery and hospitals.
and social services prioritises the needs of
vulnerable
Being vulnerable means being at risk of harm, or that you need special care because of your age or disability.
patients, ensuring they receive timely, compassionate, and equitable care to prevent further tragedies.
No one with a learning disability should be dying early because they are struggling to get the help and support they need.”
-ENDS-
For further information or to arrange an
interview
An interview is a meeting where you talk to someone or a group of people about something. When you have an interview for a job, you have to answer questions and say why you would be good at the job. The person who gives the best answers is offered the job.
with a Mencap
spokesperson
A spokesperson is someone who speaks up about something. They usually speak up on behalf of a group or
organisation
An organisation are a group of people who work together.
.
or
case study
A case study is a piece of writing that tells people more information about someone's
experience
Experience is when you have learned or tried something before.
.
, please contact Mencap’s media team on: media@mencap.org.uk or 02076965414 (including out of hours).
Notes to editors:
About Mencap:
Mencap exists to ensure the UK is the best place in the world for people with a learning disability to live happy and healthy lives. We support people directly and
campaign
A campaign is when people work together to try to change something.
with people with a learning disability, their families and carers. We work to change laws, increase representation and campaign for better health, social care and
employment
Employment means having a job.
opportunities for the 1.5 million people with a learning disability in the UK.
What is a learning disability?
A learning disability is a reduced intellectual ability which affects someone for their whole life. Typically, people with a learning disability need more time to learn and process information. They may need extra support to develop skills, complete tasks and interact with others, or they may have more complex needs requiring round-the clock care. The level of support needed is different for everyone and may change during a person’s lifetime.
Learning disability is NOT a mental illness or a learning difficulty. Often, the term ‘learning difficulty’ is wrongly used in place of ‘learning disability’. Having a learning difficulty (such as ADHD or
dyslexia
Dyslexia is a learning difficulty. People who have dyslexia can find it hard to read, write and spell.
) may mean a person learns at a different pace or in a different way BUT – unlike a learning disability - it does not affect a person’s intellect.
With the right support, most people with a learning disability can lead happy, healthy, independent lives. At Mencap, it’s our mission to remove societal barriers and shatter misconceptions to make this more possible for more people.
Mencap’s guide to reporting on Learning Disability
When it comes to creating content with people with a learning disability, we know many people feel nervous about saying and doing the wrong thing. Our guide for journalists, covers everything from up to date facts and figures to the right language to use. It also includes tips on how to work with people with a learning disability to gather the best content.