Jon Sparkes, OBE, Chief Executive at learning disability charity Mencap, said

“It’s positive that the government is focusing on reducing waiting times for treatment because we know delays in accessing care are a key cause of avoidable deaths of people with a learning disability. But accessibility has to be front of mind when technology systems are changed or introduced.

"Mencap's research has shown that over half (51%) of people with a learning disability who said they needed communication support at the doctors did not get it and most had not been asked about their support needs.  


" Accessible information for people with a learning disability, for example in Easy Read , about appointment times, locations and treatment, will be more important than ever, as new integrated diagnosis and treatment options become available.  We need to feel confident that, in shifting the NHS from analogue to digital, the NHS Accessible Information Standard will be fully implemented, so that disabled people do not miss out on the reasonable adjustments they need for their successful care.”

-ENDS-          

For further information or to arrange an interview with a Mencap spokesperson or case study , please contact Mencap’s media team on: media@mencap.org.uk or 02076965414 (including out of hours).        

Notes to editors:  

Government press release.

About  Mencap:    

Mencap exists to ensure the UK is the best place in the world for people with a learning disability to live happy and healthy lives. We support people directly and campaign with people with a learning disability, their families and carers. We work to change laws, increase representation and campaign for better health, social care and employment opportunities for the 1.5 million people with a learning disability in the UK.

What is a learning disability?      

A learning disability is a reduced intellectual ability which affects someone for their whole life. Typically, people with a learning disability need more time to learn and process information. They may need extra support to develop skills, complete tasks and interact with others, or they may have more complex needs requiring round-the clock care. The level of support needed is different for everyone and may change during a person’s lifetime.  

Learning disability is NOT a mental illness or a learning difficulty. Often, the term ‘learning difficulty’ is wrongly used in place of ‘learning disability’. Having a learning difficulty (such as ADHD or dyslexia ) may mean a person learns at a different pace or in a different way BUT – unlike a learning disability - it does not affect a person’s intellect.  

With the right support, most people with a learning disability can lead happy, healthy, independent lives. At Mencap, it’s our mission to remove societal barriers and shatter misconceptions to make this more possible for more people.  

Mencap’s guide to reporting on Learning Disability  

When it comes to creating content with people with a learning disability, we know many people feel nervous about saying and doing the wrong thing. Our guide for journalists, covers everything from up to date facts and figures to the right language to use. It also includes tips on how to work with people with a learning disability to gather the best content.