Jon Sparkes OBE, Chief Executive at Mencap says:
"This research shines a light on the shocking reality that young people in Scotland with a learning disability are missing out on healthcare at scale and dying before their time. Many of these deaths are avoidable and for conditions which are treatable, and we need to do better.
“Often all it takes are reasonable adjustments like easy-to-read information, longer appointment times and simple explanations about treatment and care which can make all the difference in ensuring they are confident to get help when they need it, explain their symptoms and get diagnosed and treated early. There are also issues of diagnostic overshadowing where doctors sometimes assume someone's symptoms or behaviour is due to their learning disability when something more worrying is going on so it is vital that doctors and nurses have learning disability training.
"We know that these measures and others do work – life expectancy has improved a little in recent years - but we need to keep up the effort until people with a learning disability can enjoy the same health and lifespan as everyone else."
-ENDS-
For further information or to arrange an
interview
An interview is a meeting where you talk to someone or a group of people about something. When you have an interview for a job, you have to answer questions and say why you would be good at the job. The person who gives the best answers is offered the job.
with a Mencap
spokesperson
A spokesperson is someone who speaks up about something. They usually speak up on behalf of a group or
organisation
An organisation are a group of people who work together.
.
or
case study
A case study is a piece of writing that tells people more information about someone's
experience
Experience is when you have learned or tried something before.
.
, please contact Mencap’s media team on: media@mencap.org.uk or 02076965414 (including out of hours).
Notes to editors:
About Mencap:
Mencap exists to ensure the UK is the best place in the world for people with a learning disability to live happy and healthy lives. We support people directly and
campaign
A campaign is when people work together to try to change something.
with people with a learning disability, their families and carers. We work to change laws, increase representation and campaign for better health,
social care
Social care means the services that give care and support to people who need it.
and
employment
Employment means having a job.
opportunities for the 1.5 million people with a learning disability in the UK.
What is a learning disability?
A learning disability is a reduced intellectual ability which affects someone for their whole life. Typically, people with a learning disability need more time to learn and process information. They may need extra support to develop skills, complete tasks and interact with others, or they may have more complex needs requiring round-the clock care. The level of support needed is different for everyone and may change during a person’s lifetime.
Learning disability is NOT a mental illness or a learning difficulty. Often, the term ‘learning difficulty’ is wrongly used in place of ‘learning disability’. Having a learning difficulty (such as ADHD or
dyslexia
Dyslexia is a learning difficulty. People who have dyslexia can find it hard to read, write and spell.
) may mean a person learns at a different pace or in a different way BUT – unlike a learning disability - it does not affect a person’s intellect.
With the right support, most people with a learning disability can lead happy, healthy, independent lives. At Mencap, it’s our mission to remove societal barriers and shatter misconceptions to make this more possible for more people.
Mencap’s guide to reporting on Learning Disability
When it comes to creating content with people with a learning disability, we know many people feel nervous about saying and doing the wrong thing. Our guide for journalists, covers everything from up to date facts and figures to the right language to use. It also includes tips on how to work with people with a learning disability to gather the best content.