What is LeDeR?

A group of people sitting around a table having a discussion. On the table is a picture of a young person and gravestone

LeDeR is short for Learning from Lives and Deaths of people with a learning disability and autistic people.

It is a group that finds out how people with a learning disability or people with autism have died.

Logos of NHS England and King's College London

LeDeR is run by NHS England and Kings College University.

A man holding a sign with a red cross with a line then showing the same man holding a sign with a green tick showing improvement

LeDeR wants to:

Make social care and health care better for people with a learning disability or autism

Graphic of a gravestone with RIP in white writing, with a red cross over it

Stop people from dying too soon.

A woman sitting at a computer with a LeDeR report on the screen

If someone over 18 with a learning disability or autism in England dies, it can be reported to LeDeR.

Anyone can fill in a report to LeDeR online.

A woman writing on a clipboard with a question mark in a speech bubble above her

Someone from LeDeR will then find out about that person’s life and the care they got before they died.

This person is called a reviewer. They will ask questions about the person who died.

They look into how the person died and whether they got the care and support they needed.

A woman with a clipboard and a question mark next to a family sitting on a sofa together

The reviewer can talk to:

Family or friends of the person who died

A woman with a clipboard and a question mark with a doctor

The doctor of the person who died

A woman with a clipboard and a question mark and a carer with a person she is supporting

The carer of the person who died

A woman with a clipboard and a question mark next to a woman opening a box of paper files

The reviewer can also look at things like doctor’s notes and some medical records about the person who died.

Two people pointing at a board with three green ticks

The reviewer will look for good things that happened in that person’s care.

If something was really good about the care they got, the LeDeR team could use what they find out to make sure it happens for everyone.

Two people pointing at a board with three red crosses on it

They will also look for bad things that happened.

If something went wrong, the LeDeR team should make sure that the local health and social care services learn lessons and make sure it does not happen again.

A cover of a report that says Review in black writing at the top with a graphic of a gravestone with a person's face on it below

The reviewer will share what they find about the person who died in a report.

The reviewer sends the report to the research team that looks at the reports from the whole of England. They are the team at Kings College.

A man looking through a magnifying glass while wearing a blue checked shirt.

Sometimes LeDeR will decide to look more closely at a person’s death.

This is called a focused review and goes into more detail about what happened to them.

A group of people from black and Asian backgrounds

Every person who died who was from a black, Asian or another ethnic minority background will have a focused review.

What is the LeDeR annual report?

Covers of the 2023 LeDeR report and easy read version

The team at Kings College use all the information they get to make a report.

The Kings College LeDeR team makes a report once a year.

It is called the LeDeR annual report .

The LeDeR Report looks at all the deaths of people with a learning disability or Autism that were reported to LeDeR.

A woman and man holding clipboards, one with green ticks and the other with red crosses. Behind them are medical and social care professionals, with the NHS and Care logos underneath

The report looks at the health and social care people with a learning disability got before they died.

The report talks about good things and bad things about their care.

A child, adult, and older person next to a gravestone

The report also says:

How old people were when they died

People showing signs of being ill in front of a gravestone

What illnesses or diseases people died from

Healthcare professional performing an ultrasound on a patient lying in a hospital bed.

If the people's deaths might not have happened if they had got better care.

A woman pointing at a list called Things to change

The LeDeR Report also says what the government and NHS should change to make sure people with a learning disability or autism get better care in the future.