Letter to GPs about the learning disability register and annual health checks

Letter to GPs about the learning disability register and annual health checks

Wes Streeting MP head and shoulders photograph

I am Wes Streeting MP, Secretary of State for Health and Social Care.

Ismail standing outside Number 10 Downing Street

I am Ismail Kaji, Mencap’s Parliamentary and Government Engagement Officer. 

I have lived experience of learning disability and living with health conditions.

A man holding up an easy read booklet

We are writing this easy read letter together to help work on tackling health inequalities that affect people with a learning disability.

A young man with open arms

Easy read is always useful when it comes to clear communication so it’s inclusive and everyone understands.

A surgery doctor, nurse and receptionist

This information is for all health staff working in a GP Surgery. Not just doctors and nurses.

A letter requesting someone for an annual heath check next to a picture of a health action plan. Beside these two pictures is a photograph of a doctor talking to a patient at a desk

Annual health checks and health action plans are important for the health of people with a learning disability.

Images of the covers of the easy read and full versions of the 2022 LeDeR annual report

Evidence from the Learning from Lives and Deaths Review (LeDeR) shows that health checks lower health inequalities for people with a learning disability.

 A group of people with one person standing ahead of the group

People with a learning disability die up to 19.5 years younger than the general population.

An image of a man having an epileptic seizure and a picture of someone having a diabetes blood sugar test

We know health checks are very important for people who live with conditions like epilepsy or diabetes.

A reminder letter for an annual health check

Annual health checks can help people with a learning disability have access to additional support such as vaccination and immunisation or cancer screening.

A sheet of paper with easy read information on it.

Giving people with a learning disability accessible information, like this letter, and reasonable adjustments to meet their needs, will help to find health problems as early as possible.

An easy read front cover of the Learning Disability Register

Around 3 in 4 people with a learning disability are missing from GP learning disability registers.

A group of people from black and Asian backgrounds

Those missing are likely to be people with a mild learning disability and people from Black and Asian backgrounds.

A woman pointing at a page that says NHS Learning Disability Register

A person does not need to have a special assessment or test to be on the learning disability register.

Doctor surgery GP

Some people might talk about having a learning difficulty. You might need to use your judgement here. Everyone has a part to play in being aware of the register and looking at who should be on it. 

A woman holding up a clipboard with a green tick on it. Her other hand is raised with her thumbs up

What a good health check looks like

A man is shaking the hand of an older woman

It’s best when the check is done in the surgery with a doctor or nurse that knows the person well. This means that the patient with a learning disability is more relaxed.

A nurse is filling out a questionnaire for a man next to her who is sat up on a bed

The doctor or nurse can see the person and look at their body and they can ask questions about how the person is doing.

A picture of a man with a frame being helped by 2 health workers next to a picture of a doctor having a video call from her office with a patient

For people who have mobility issues and find moving around challenging and need extra help, health professionals need to see the person at their home or have a call online instead.

a drawing of a health action plan

Health action plans are important. When someone has a health check this should lead to a health action plan.

A list of years from 2022 to 2026 with a pen about to tick the box next to the 2026 date

Health action plans should be used all year and reviewed at least once a year.

A woman in a wheelchair with a speech bubble that reads "I need..." with a clock, easy read page, and ramp representing reasonable adjustments.

When the action plan is being updated it is a good time to think about people’s support needs and making sure the information in their reasonable adjustment flag is updated.

A drawing of an NHS contract paper

The General Medical Services (GMS) contract says that patient records must be kept up to date, including for patients with a learning disability.

A woman in a wheelchair is talking to her doctor at her desk

The Investment and Improvement Fund (IIF) gives support for health checks and health action plans for patients on the learning disability register aged 14 and over.

A photograph of a person entering an NHS building

Health checks and health action plans for people with a learning disability are still supported by the Direct Enhanced Services (DES).

A man shakes a woman's hand and says 'thank you'

Thank you for your work on delivering health checks. 

This is good for people with a learning disability. GP surgeries also get extra money for doing this important work.

Image of The Houses of Parliament

The government’s 10 Year Health Plan wants to move care from hospitals to local areas and stop people getting ill, rather than just treating them once they are unwell.

staff support team

GPs are very important in stopping people with a learning disability from getting ill and supporting them to lead healthy lives.

Patients sitting in an NHS waiting room

Everyone in the GP surgery has a role to play in being aware of the learning disability register, and supporting people to benefit from being on the register.

a woman in a wheelchair has her hand on another woman's shoulder. Behind them is a drawing of coloured flower petals

This is the gateway to good quality annual health checks and health action plans and supporting people with their health and wellbeing.

A man standing at a reception desk talking to a receptionist who is giving the man something

We know there is a lot of good work already happening and want to thank you for providing support for people with a learning disability.

A blue letter i in a blue circle.

Additional information

The following resources are available to support you to provide good care for people with a learning disability: