Celebrating support workers and social care staff and highlighting their skills

A support worker sitting next to someone he cares for who is eating lunch

140,000 people of working age with a learning disability in England get social care support within the community to help them live their best lives. 

Our Why We Care report, examines the social care system in England and Wales through the experiences of those who work in it. It explores the challenges of the sector and celebrates the dedication of frontline staff supporting people with a learning disability, looking at what motivates them, what they do and the value they bring to people’s lives.

A letter from our Acting Chief Executive Officer
A support worker is crouched down next to the lady she cares for who is sitting on a chair
Why We Care Easy Read
A support worker helps someone on a laptop sitting at a desk
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Social care in crisis

26%

of social care staff we surveyed
had difficulty recruiting and 
retaining care workers
 

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87,000

people of working age 
asked for social care support 
over the last 5 years
 

205,000

adults who requested social care did not get it

 

 

434,243

people granted social care are still waiting for it

 

 

82,000

people wait over 6 months for social care

 

What social care workers do

Social care workers are professionals who work tirelessly to support people with a learning disability in every aspect of their lives. They help people manage their health, wellbeing, finances and social life and many provide emotional support. Many social care workers are skilled in first aid, giving medicines, helping tube-feed people and dealing with challenging behaviours. And they do all this whilst working to strict regulations and complicated, legal guidelines. 

Mencap staff told us in our Why We Care survey that their job gives them a ‘sense of purpose’ and that they are motivated by seeing the people they support have a good quality of life, try new things and achieve their goals.

Over the ten years I have worked in social care, I have supported some amazing, wonderful, people who have enhanced my life and opened my eyes to how the world should be for everyone. They have made me laugh and smile. No day is the same. It brings challenges, opportunities and adventures. I learn something new every day.”

- Tracy, a social care worker from Pembrokeshire
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A support worker comforting a young woman

Our Why We Care survey also told us:

  • 34% of frontline workers said they did the role to give back to society or improve lives.
     
  • 1 in 4 people said their work was 'rewarding'.
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Join the Why We Care campaign

Show your support by joining our call for more funding and better pay for workers in social care.

Sign the petition

Why We Care: What needs to change

Experts say that the government needs to invest £8.4 billion in 2024/25 to meet future demand, improve access to care and cover the full cost of social care.

We need government to take urgent action to ensure there are enough social care workers to support people with a learning disability and anyone else who needs it.

We have four recommendations on how government can do this:

Questions about Why We Care

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Why is social care in crisis?

Social care is in crisis because there is a rising demand in the numbers of people needing social care due to an ageing population and increase in disability but government funding is not keeping pace with demand.

Social care workers need a breadth of skills and take on a huge responsibility but government underfunding means that providers can often only afford to pay staff around the minimum wage mark which is causing staff to leave the sector and making it hard to recruit new staff. Existing social care staff may then find themselves working longer hours to plug the gaps leading more people to leave for other jobs in sectors like retail or logistics.

What do support workers do?

Support workers do everything they can to help people with a learning disability to live happy, healthy and fulfilled lives. Some help people with a learning disability with personal care, but there are many other aspects to the role: helping people to find a job, managing their finances, helping them to get out into the community and socialise and supporting them with everyday tasks many of us take for granted such as taking public transport or going to a doctor’s appointment. Many are also skilled in medical tasks such as giving out medication or helping people to feed through a tube.

Why do people with learning disabilities need support workers? What kind of help might they need?

A learning disability affects the way someone’s brain works, making it harder to learn, understand or do things. Support workers can bring huge value to the lives of people with a learning disability and their families, helping them to make friends, get a job or volunteer role or do the everyday tasks so they can live fulfilled lives.

How many people with a learning disability get help from a support worker?

140,000 people of working age with a learning disability living in England get social care support within the community.

What value do support workers bring to people with a learning disability?

Support workers bring huge value to people with a learning disability, helping them to live fulfilled lives, whether that’s enabling them to pursue ambitions such as going to college, getting a job or setting up home or helping them with everyday tasks many people take for granted such as making a cup of tea, going shopping or meeting up with friends.

Why are people in social care leaving the sector?

Latest figures revealed that there are 152,000 vacant posts in social care, and a third of the workforce are leaving the sector completely.  

Many are leaving the sector because they feel their pay is too low for their level of skill and responsibility especially as people working similar roles in the NHS can earn thousands more and with many struggling to get by on sector-wide low pay.  

Our research shows two-fifths of frontline staff are struggling financially, with some having to work long hours to make ends meet or even having to cut back on basic necessities. With the sector struggling to recruit and retain staff it means remaining staff are working long hours to plug the gap of there not being enough staff, which affects their work/life balance and can lead to more people to leave the sector.

What needs to change?

All political parties must commit to devising and investing in a Long-Term Plan to retain those currently working in social care and attract new staff. This means increasing pay, ensuring it mirrors roles with similar duties in the NHS and putting in place a framework so people can progress in their career.

Why don’t people just leave if they don’t like the job?

Frontline workers are the beating heart of social care – without them many people with a learning disability would lack the support they need to live fulfilled lives, making friends, being part of the community and doing everyday tasks many of us take for granted. Dedication, passion, a desire to give back to society and enjoyment of the job means that many are staying in their roles in spite of sector-wide low pay. But people doing such a crucial role should get the recognition they deserve which is why we have launched our Why We Care campaign .

How was the research conducted?

We surveyed 366 frontline staff supporting people with a learning disability including Mencap support workers, assistant service managers and service managers between 6 July and 27 July 2023 via an online survey, a printed survey with a Freepost address, voicemail and email.

*Sources:
26% of social care staff we surveyed had difficulty recruiting and retaining care workers:
- In addition to including research from existing evidence, the Mencap Why We Care report surveyed 366 frontline staff supporting people with a learning disability including Mencap support workers, assistant service managers and service managers between 6 July and 27 July 2023.
87,000 more people of working age asked for social care support over the last 5 years:
- This equates to a 15% rise ref: Mencap's Why We Care report.
205,000 adults who requested social care did not get it:
-  CQC State of Care report 2022/23. The rate of requests from working age adults per 100,000 population increased by 15% over the last 5 years, equating to over 87,000 more requests. In 2021/22, over 205,000 adults aged 18 to 64 were not provided with adult social care support when they requested it.’  
434,243 people granted social care are still waiting for it, and 82,000 people wait over 6 months for social care:
- The ADASS survey results show the number of people waiting for an assessment , care, and support to begin, or for a review of their care plan, has reduced from 491,663 in August 2022 to 434,243 in March this year. However, the number of people waiting more than 6 months for an assessment of their care needs remains high, increasing from 81,000 to 82,000 over the same period.’ www.cqc.org.uk.
2022-2023, Additional statistics taken from 'The state of the adult social care sector and workforce in England' publication on www.skillsforcare.org.uk