The work has been led by Sir Stephen Bubb (ACEVO), working with key stakeholders on the TCCG, including Mencap, The Challenging Behaviour Foundation (CBF), the National Forum for People with Learning Disabilities, the National Valuing Families Forum and others.
The report was commissioned by NHS England to support and enhance existing activity, to ensure thousands of people with a learning disability who are still stuck in Assessment and Treatment Units are supported to move back to their local community.
The key recommendations of the report include the following:
- a programme of closures of in- patient institutions providing inappropriate care
- a Charter of Rights for people with a learning disability and their families
- a £30million investment programme to build community- based services and housing options for people with a learning disability
- a new initiative to make sure the workforce have the right skills to support people whose behaviour is described as challenging.
Mencap and The Challenging Behaviour Foundation, who have campaigned jointly on action needed after Winterbourne View, welcome the report, but insist there needs to be a robust action plan and urgent change on the ground to see it deliver on its recommendations.
Jan Tregelles, Chief Executive at Mencap, and Viv Cooper, Chief Executive at the Challenging Behaviour Foundation said:
We welcome much of what is included in Sir Stephen Bubb’s report, but it must now lead to a clear plan and urgent action. Change to commissioning practices and development of local services is needed to support people to move out of Assessment and Treatment Units and back into the community. NHS England and the government need to explain how they will act on these recommendations, especially in the light of the Minister for Care’s recent announcement of a forthcoming government ‘Green Paper’.
People with a learning disability and their families have been repeatedly let down by the failure to achieve the change we all want to see. The quarterly data that NHS England published earlier this month showed that for a fourth quarter* more people with a learning disability are continuing to be admitted to inpatient care than are coming out. Although more people now have a discharge plan the data shows large numbers of people having to wait years to return to their local community, which is not acceptable.
Following the scandal at Winterbourne View, which uncovered systematic abuse and neglect of people with a learning disability, there was a clear commitment from government, the NHS and local authorities to ensure that people with a learning disability get the right support and services in their local community.
This was meant to have been achieved by June 2014, but the deadline was missed. Earlier this week, we heard the coroner’s judgement on the death of Stephanie Bincliffe, who tragically died in an Assessment and Treatment Unit in 2013. She was a young woman with her whole life in front of her and her family have been devastated by her loss. But they are not alone; other families have lost loved ones in in-patient settings. We also know these are places where people at are significant risk of abuse and neglect. It has been almost four years since Winterbourne View, and in that time there have been countless meetings, many reports and strategies, but little has improved and families are still fighting to get their loved ones back into the community. NHS England, working with their partners in government and local authorities, must now lead on enacting these recommendations as a matter of urgency. Anything less and they will have grossly failed the most vulnerable people in our society.
Chris, 22, has Autism and Severe Learning Difficulties. For more than 3years he has been detained in an Assessment and Treatment Unit run byCalderstones NHS Trust. His mother wants him to be moved out to somewherethat is near his loving family. She is extremely concerned for his safety.
A safeguarding investigation concluded that Chris had suffered 'institutional abuse' and he had been hit by staff. Further claims by a whistleblower stated that they had witnessed Chris being spat at, kicked at, hit inthe chest and had sanitiser sprayed into his eyes.
Lynne McCarrick, Chris's mother, said:
Chris was sent to a hospital as the Local Authority and NHS said there wasnowhere else for him to go. He is now trapped in this unit and can't get out.
My beautiful son has many amazing attributes. He is funny, lively and hasgreat potential yet there he is, isolated in a flat in a hospital with only paid carers around him. He has been denied education and has no peers. Behind closed doors Chris has suffered terrible physical and psychological abuse and on a day to day basis he is starved of stimulation and given high levels of medication and physical restraint. He has no life, he simply exists and yet his service is bewilderingly expensive. My son continues to languish in what is effectively a 'holding' bay'. Chris has no voice so we make our concerns known but we are ignored and shutout. I want him to be near his home and family, so we can make sure he is safe and is given the opportunity to live a life.
* NHS England Quarterly data: http://www.england.nhs.uk/ourwork/qual-clin-lead/wint-view-impr-prog/#sept
For further information or to arrange interviews, please contact the Mencap press office on 020 7696 5414 or email@example.com.
Notes to editors
About The Challenging Behaviour Foundation
The Challenging Behaviour Foundation (CBF) is an independent charity providing information, support and workshops around challenging behaviour associated with severe learning disabilities to families and professionals.
The CBF leads the ‘Challenging Behaviour National Strategy Group’ which seeks to influence policy and practice nationally and has developed the Challenging Behaviour Charter.
The Challenging Behaviour Foundation was founded in 1997 by Vivien Cooper, parent of a son with severe learning disabilities who displays behaviour described as challenging.
Today the Challenging Behaviour Foundation is in regular contact with over 5000 families and professionals across the UK. There are an estimated 30,000 individuals in England with severe learning disabilities and behaviour described as challenging.
About Royal Mencap Society
There are 1.4 million people with a learning disability in the UK. Independent charity Mencap works to support people with a learning disability, their families and carers by fighting to change laws, improve services and access to education, employment and leisure facilities.
Mencap supports thousands of people with a learning disability to live their lives the way they want.