Guides and factsheets for professionals, carers and family to support and work with people with PMLD:
Involve Me booklet and practical guide
Involve Me is about ways of involving people with profound and multiple learning disabilities (PMLD) in decision-making and consultation.
The summary is the booklet of the full version of the Involve Me practical guide. It looks at different ways of working with people who often get left out because we find it difficult to understand their communication or worry about 'getting it wrong'.
The materials pull together what we learned from people working creatively to support communication, understand preferences and involve people with PMLD.
Involve Me training
Learn best practice approaches to involve people with profound and multiple learning disabilities in consent and decision making. Find out about our Involve me training.
Other resources and guides
These guides and resources are included in the interactive guide which you can read for more info. You can also give us your feedback about which elements you find the most useful, it will help us to develop Involve Me and the training materials.
A factsheet giving an overview of why we describe people with profound and multiple learning disabilities, who has these disabilites and what their needs are.
This factsheet by British Institute of Learning Disabilities (BILD) is about advocacy. It also lists the basic principals and the different types of advocacy. Advocacy is an important way for people with a learning disability to have more choice and control in their lives.
Download the factsheet: advocacy
Intensive Interaction is a practical approach to interacting with people with learning disabilities who do not find it easy communicating or being social. Find out how about communication and people with the most complex needs, what works and why this is essential.
Download Bild factsheet Intensive interaction (PDF)
Communication and people with the most complex needs
This report provides some answers to the question "Communication and people with the most complex needs - what works and why this is essential?"
Within "complex needs" we include people with profound intellectual impairments, people with severe autism, and people whose severe learning disability or autism is complicated by behaviour labelled as challenging.
This guide is about the main ways to communicate with people with PMLD, it lists different ways like using a Big Mack, Etran and objects of reference to aid you in your communication.
Download Involve Me communication toolkit (PDF)
Involve Me awareness session plan
A session plan providing materials to aid you in your presentation about Involve Me to present to your work or group meeting.
Download Involve Me awareness session plan (PDF)
Involve Me session plan presentation
This guide can help you with your presentation about PMLD, you can use the guide for your Powerpoint or slideshow.
Download Involve Me session plan presentation (PDF)
The following Office for Public Guardian (OPG) booklets provide resourceful information for carers and family who work with people with PMLD. Included in this section is the Consumer Financial Education Body (CFEB) about managing money.
Making decisions about your health welfare or finances
This booklet gives you information about the Mental Capacity Act 2005 (MCA), which affects anyone who is unable to make some or all decisions for themselves.
Making decisions for family and unpaid carers
This guide is for family and unpaid carers to become a deputy and help people unable to make decisions for themselves
A guide for people who work in health and social care
This guide contains information about mental capacity, what is the Mental Capacity Act (MCA), 5 principals of MCA and helping people make decisions for themselves.
A guide for advice workers
This booklet is for advice workers and others who give advice as part of their job. It tells you about the Mental Capacity Act and how it affects your work.
Download a guide for advice workers (OPG604)
The Mental Capacity Act - easyread
This booklet is about a law on decision making called the Mental Capacity Act. It also contains information to help and support people who are unable to make some decisions for themselves.
Download The Mental Capacity Act (OPG605)
The Independent Mental Capacity Advocate service
A guide about advocacy and the Independent Mental Capacity Advocate (IMCA) service and how it works.
Help with managing money
A guide from the Consumer Financial Education Body (CFEB) to help people manage their money.
Download help with managing money
Give us your feedback
We want to know more about the people and organisations that take an interest in Involve Me. This will help us to develop Involve Me and the training materials we will use to support its implementation.
Please tell us which elements of the information has been most useful to you, fill out the short feedback form.