Involve Me has been independently evaluated by the Foundation for People with Learning Disabilities. The team was lead by Hazel Morgan with Molly Mattingly, Dr Paul Swift. The critical friends were Jean and Victoria Willson, Pat Charlesworth and Jane Jones.
The evaluators looked at how people with PMLD are involved in decisions about their lives, using the different site approaches of StorysharingTM, peer advocacy, creative communication and multi media profiling.
The evaluation looked at how people with PMLD at four sites are involved in decisions and consultation about:
- everyday life
- support and services
- community involvement
- national involvement
It looked at:
- the kinds of decision the person has been involved in
- the way the person has communicated their wishes and how this may have changed, with particular reference to the approach used at the site
- the way the person has participated in decisions
- the ways in which the person’s participation in decision-making has changed and developed
- any changes in the person’s life or any outcomes that have resulted from the approaches used
- what worked well, both in the process and in getting an outcome
- what worked less well in the process and in getting an outcome
- what the participant would like to happen differently in the future – this might be a change to the way they communicate with others or something that needs to change in the external environment (for example, a partnership board having a different way of working).
The evaluation has produced 16 recommendations.
The Independent evaluation report can be read for more information.