We finally have answers for him and it is a relief to finally know why most of Lewis's delays, asd traits, speech and language problems are there. We are yet to have a meeting with the genetics doctor to discuss everything that will happen in April.
It feels weird to finally have a reason and when reading about the duplication it is like reading about Lewis.
You would think I should be contented now that I finally have a definate answer why yet I now have new list of questions for genetics team ie how old mentally will my little boy grow to be as a adult. This I know will not be known as each child is different, I want to know will he ever be independant fully I really hope so but we are seeing his delay gap get wider he is nearly 7 now and at developmental level of a 3.5yr old, speech wise he at a 2.5yr old.
I just have so many questions why arrnt we as parents ever happy but I feel I need to know so I know whats ahead - a feeling lots of other parents feel when they get a diagnosis after a very long wait.
We know the next step also now is testing for the duplication for myself, daniel, adam, chloe and our new addition Joshua even tho chloe has no learning disabilities or health problems etc she will need to be tested to see if she is a carrier as this could affect any children she has once a adult, testing on me is to determine whether Im a carrier to.
Joshua our new addition is the spitting image of Adam and Lewis he was born 5 March at 9.36pm weighing 7lbs 2oz's no apparent health problems so far so fingers crossed none will arise. Im trying my best not to be a paranoid parent with him which is hard as anybody can imagine.
So now my family is complete and I have 6 happy children who are my world and as usual me and Lee work together as a team to make sure they are kept safe and happy and despite their disabilities lead a normal life like other children with no extra needs do.