Lewis was seen by camhs who are saying he isnt asd but I still feel he is but am not following it up atm due to so much going on. He is doing well at school and is now on levels p6 for most subjects :) he is getting a lot of speech therapy as there isnt improvement in his speech. He is now diagnosed as having speech and language disorder and his levels are 2.5yrs for speech and 3yrs for understanding language, his overall development is at a 3yr old level including his behaviour.
We still get daily tantrums from him but we cope and deal with them as and when they happen. Sadly due to his growth hormone deficiency his teeth have started decaying so he is due to have 5 extracted at the end of november and 3 treated to try stop them decaying too bad. He will need constant monitoring specially when his adult teeth come thro to try stop them from decaying.
He has been recently diagnosed with hypfermobility syndrome to and we are waiting for special piedro boots with insoles built into them to try to straighten his ankles and he now has use of a maclaren major buggy for when we go out, as walking causes him a lot of pain and discomfort.
Daniel has also been diagnosed with speech and language disorder as well as his selective mutism. He is getting a lot of speech and language input and is at same level as Lewis. So both boys are more like 3yr olds than nearly 7yr olds, their delay gap is sadly getting bigger which worries me greatly.
Daniel has also been referred to camhs now he is 6 paed is now thinking adhd and sensory processing disorder I agree with this to a certain extent but am just going to leave it to them to decide and not say what I think when asked.
Both boys are really doing well in their unit and I recently asked about putting them into mainstream school near to me with support, but sadly I have been told this will not be possible. Neither of them are ready and there are fears of regression, plus mainstream wont be able to support them with all the input and therapies they need that they currently get at their unit so they are staying where they are.
Adam is now under lots of assessments since leaving primary school in July he has managed to get himself into lots of trouble. He regressed in high school and couldnt handle the mainstream classes as they were to big for him so has been put into a special nurture group. He isnt making friends or interacting to good with other pupils at high school and finding it very hard. Luckily his high school have provided him with a lot of support and are eager to get Adam diagnosed so they can give him/get him more help.
Chloe is a typical 9yr old girl who still helps as much as she can she is doing brilliant in school and makes us so proud of her daily.
Me and Lee are now happily married and working well still as a team. We also discovered we are expecting a baby HUGE shock but we got over the shock and a little boy who will be called Joshua will be joining our family in March 2011 :)
We also had genetic tests done after Kayleigh-Mays results and all came back clear we didnt pass her deletion onto her so that makes us feel better that baby Joshua shouldnt have any health problems like his older siblings... the children are all excited about the baby and it will be our family completed as I will be getting sterilized asap after the birth.
So thats it really been busy few months yet again but fingers crossed appointments and meetings will start to calm down now
I am also busy running a facebook group that is aimed to support parents who's children have been diagnosed with global developmental delay name of the group is ‘my child has global developmental delay'. It is a closed group so you have to request to join but if anybody would like to join for some support from other parents in the same situation as them please feel free to join it is becoming a active group :)
Hope everybody has a lovely christmas and that 2011 is a nice happy year for you all xx