The Lambeth PMLD project explored the numbers and needs of people with PMLD in Lambeth. Mencap led the project, which was initiated by family carer representatives on the Lambeth learning disability partnership board. The collaborative project was run with family carers in Lambeth, Lambeth Council, NHS Lambeth, Lambeth Mencap and ‘I Count' Register Services.
- The findings in the Lambeth PMLD report reflect the national picture of what life is like for people with PMLD.
- A priority issue to come out of the project is to ensure family carers who are caring for someone with PMLD in the family home in Lambeth get the support they need - help from support staff with the right skills, reliable, high quality respite, better information and advice about local services and how to manage direct payments and individual budgets.
- Findings also indicate that people with PMLD living in the family were less likely to have a person-centred plan or health action plan which suggests family carers need more support with these.
The project and its recommendations will:
- help Lambeth Council and NHS Lambeth better plan for people with PMLD
- help other local areas to focus on the needs of people with PMLD and ensure their plans are inclusive of those with the most complex needs
Focusing on the needs of people with PMLD so they don't miss out is something Professor Mansell said all local areas should be doing, in ‘Raising our Sights: services for people with profound intellectual and multiple disabilities', commissioned as part of the Valuing People Now delivery plan.
Local authority social care services, together with their education and health partners, should keep up to date information about the numbers, needs and circumstances of people with PMLD in their area currently and projected in future to enable effective planning of services.
About the project
The well-maintained learning disability register in Lambeth helped us to identify the population of people with PMLD in the area. Criteria were developed using the PMLD Network definition of profound and multiple learning disabilities, and applied to the register. 81 people were identified as likely to have PMLD, which fitted with the local estimate given in Emerson's report ‘Estimating future numbers of people with profound and multiple learning disabilities in England.'
In addition to information from the register, we surveyed and interviewed family carers and support staff for the project. This enabled us to get a picture of what life was like for people with PMLD in Lambeth.
Lambeth will continue to use the criteria developed during the project to identify people with PMLD on the register and better plan to meet their needs.
For more information about the project, please contact:
Telephone: 020 7696 6019