For some parents the mixed emotions that follow a diagnosis can take a long time to come to terms with, so finding ways of coping are very important.
1) Some parents have told Mencap that finding out about their child's condition allowed them to help themselves and their child. Making contact with organisations that support people with your child's specific condition can be especially helpful.
2) Find out where to get information, support and advice, and look out for social opportunities in your local area. This can help you to feel more in control, and can provide opportunities for other family members to get involved.
3) Contact other families in a similar situation through local groups. Sharing your experiences with others can be valuable and very rewarding, and can help to remind you that you are not alone.
4) Most importantly, don't forget yourself. Having family and friends to talk to at difficult times can help to relieve emotional stress. If you need a break from your caring responsibilities you should contact your social worker or health visitor who will be able to offer advice and support.