Brother and sister Hollie, 20, and Christian, 23, love to go bowling, travel to different towns and visit museums and art galleries.
But they rarely get to enjoy a family day out together because there are not enough Changing Places toilets - with a hoist, changing bench, and plenty of space.
Most of us take it for granted that we will be able to use a toilet wherever we go, but for Christian and Hollie this basic need often can't be met.
Without Changing Places toilets, the family can only consider going out for a few hours at a time.
Their mother Rosemary explains: "We just want to be able to enjoy a day out as a family. Many people moan about the lack of public toilets in their community, but people who need Changing Places toilets are rarely given the opportunity to air their views on the subject. We want to be able to travel further from our home and experience different things and go to different places - just like everyone else."
Changing Hollie and Christian on dirty toilet floors puts their health seriously at risk, especially as they both have medical conditions that put them at huge risk of infection.
Sometimes the only option for Hollie and Christian is to be changed on public toilet floors, which is unhygienic, degrading and undignified.
"We've had horrendous and deeply distressing experiences of using inadequate toilet facilities. Changing Hollie and Christian on dirty toilet floors puts their health seriously at risk, especially as they both have medical conditions that put them at huge risk of infection. There should be Changing Places toilets everywhere."
Why can't there be a platform and hoist in every disabled toilet facility so that parents or carers can change older children and adults without having to resort to lying them on a dirty floor. No one else would accept being treated this way
There should be a way to e-mail this to local NHS boards as well as I'm fed up of asking why there isn't any changing facilities other then for babies