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Hi all im currently raising awareness of global developmental delay with a group of parents/carers who are all living with GDD so far we have had GDD awareness wristbands made and the actor Will Mellor wears one of our bands to help support raising awareness!!
Also i have now launched a website and forums to support families/carers living with GDD and also help in our mission to raise awareness worldwide off GDD and how it affects families etc please if your dealing with global developmental delay in your family feel free to visit our website and forums and join us :)
Hi I have just found this page after trying to re-search on how to go about trying to raise
Awarness for Children with GDD....I have a Little Boy who has been diagnosed with Global delay and
After extensive searching I don't seem to be able to find a lot of information about the whole Meaning and Outcome for a child when diagnosed..I also belive that there is Definatly not enough Information for Children, Parents and family and friends to read up on or even discuss when this diagnosis has been given.
After going through the challenges of getting the diagnosis and why they feel it is the correct diagnosis for my son..I am still currently facing a long battle with him getting th correct help and support during his education due to in the area I am living the school and local authority don't seem to have much knowledge about the struggles and the extra support that is needed for My lil man to reach his full potential within his schooling.. Also I would appriciate some information about how the general ' Statement' Process is acknowledged with a child with the GDD diagnosis...and How the estimated 6month waiting time will impact in how well he copes in a Mainstream classroom...
If anyone running these awareness campaigns would like a extra pair of hands ( possibly a lot more help avaliabl from family friends etc) or just even figuring out new ways to help support and spread the word about the GDD awareness cause.... Would be more than happy to help and also would be Beneficial to Myself to understand and have more information about GDD it would be much appriciated..
Sorry if its posted in wrong place or if it hasn't made much sence
Emily-----Toms Mummy GDD diagnosis since feb 2012
0808 808 1111
Lines open 9am to 5pm, Monday to Friday
Charity number 222377 (England, Northern Ireland and Wales); SCO41079 (Scotland)