Developing ICT skills and networks of support.
Other Mencap sites
I'm new to this forum. My 12 month old daughter was diagnosed with severe frontal lobe damage (caused by lack of oxygen at birth) when she was 4 months old. I'm still struggling to come to terms with her brain damage. I'm hoping to get in touch with parents of other children with frontal lobe damage. I don't yet know how severe her learning disablilty will be.
Hi charloma and welcome to the families forums.
Thank you for coming online to share your experiences - we've heard from a lot of parents how difficult the experience of diagnosis can be, especially when there are still so many uncertainties about the future. I imagine you're still feeling totally up in the air about everything - but there is a lot of support and information available, and lots of reasons to be optimistic about the future.
Hopefully you'll hear from other parents here soon who will be able to share their experiences too. In the meantime you might like to read our families blogs and real life stories from other parents and carers at www.mencap.org.uk/landing.asp?id=4201 We also have an online guide to having a child with a lerning disability which you can read and download at www.mencap.org.uk/learningdisabilityguide
Best wishes and keep in touch!
i am new her i came to uk with my son befor 8 months.... My son abdullah has learning difficulty....... i am so confused i dont know what to with him he doesnot know english ...i made a claim 4 learning difficulty and ...they meet him bec i want any sort of education to my son,and yet no dision and iam waiting.......my son very nerves no friends all time he alone ... angry slam door shouting screaming i try to calm him down he always asking me why god makes me stupied why i dont understsnd why i cant read like other .... i searched on net founding this web hope it helps me
My son was brain damaged at birth too, so I know how difficult it can be. Be sure to find out about benefits as soon as possible. Money won't cure your child but it sure makes looking after him/her easier if you have a dishwasher, washing machine and tumble dryer. If money is an issue, find out about the Family Fund, who can help with large purchases.
I formed a charity for all special needs children and their families in a rural area - you are not alone. We always learned more from each other than from "professionals".
Also, find out about the Carer's Allowance - if you are not working you will be entitled to it. Good luck
Hi my daughter now 22 has damage of the frontal lobe she developed epilepsy but it was the epilepsy that has caused the problems not the damage, the brain is amazing in what it can correct/ compensate for given the right stimulation and any improvement however slight is worth it. I suspect their are some difficult times ahead but my advice is to find out as much as you can as there are therapies out there that the Health Service as a whole are only just starting to recognise.
Hi. I was just curious about your situation. My son is 5 months and he has brain damage due to lack of oxygen. We dont know how severe it is or will be until he is a little older Im assuming. He did have a number of seizures since incodent. Was your daughter diagnosed with any learning disabilities or anything liek that or just the epilepsy? Thanks gain and I hope to hear from you soon.
0808 808 1111
Lines open 9am to 5pm, Monday to Friday
Charity number 222377 (England, and Wales); SC041079 (Scotland)