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I am a mum of 2 adult children with Special Needs, my daughter would be 24 in January.
Liz was a beutiful young woman who overcome lots of obsticales throuhout her life,she suffered from Asperger Syndrome, low muscle tone moderate learning disability & controlled epelipsy.
When she was 20 yrs of age it was decided to change her medication due to it putting weight on,no one warned us that this was going to put her at a higher risk of dying.
Sudden Unexpected Death occurs from late teens onwards you are more at risk if your medication is altered, you have controlled epelipsy and you have a learning disablity-she had all 3.
It is sometimes called a silent seizure,it either effects the area of the brain which controls the heart or the breathing mechanism.
No one warned us of this risk!
Our daughter went to bed Sunday night as usual,I found her Monday morning-as I turned her over I saw the light had left her beutiful blue eyes.
We lost our Liz, I cannot explain the pain and loss we feel and how much her brother who has Autism & Challenging Behaviour misses his big sis.
So please support us and other parents to get proper recognision of this syndrome which kills without mercy, by logging onto the site below.
0808 808 1111
Lines open 9am to 5pm, Monday to Friday
Charity number 222377 (England, Northern Ireland and Wales); SCO41079 (Scotland)