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Hi All, I need advice and help.I have a 43 year old sister with downs syndrome who is currently cared for by my devoted elderly parents who are of the old school and do not want to share their worries and problems i fear of their daughter being removed from their care.
Obviously I know this would not happen in todays soceity but I am concerned about my parents age and the toll of looking after her with no help .I do not know what entitlements in monetary values they could apply for as they are on pensions and the costs are rising as she is deteriating and becoming solely dependant etc etc without going into too much detail.I
would just like to talk to someone about her needs and not feel so alone in my quest to make my parents life a little easier
Hi rosebush, you are certainly not alone in your concerns for your sister and parents and it is understandable that you need someone to talk to. have you tried the Mencap Helpline? their number is 0808 808 1111 and can listen and give advice on a wide range of subjects. Also you could try contacting your local mencap group if you have one in your area (look it up on this webiste under local groups) or you could try to contact your local carers centre and see if they can listen at all. I hope this helps you.
0808 808 1111
Lines open 9am to 5pm, Monday to Friday
Charity number 222377 (England, Northern Ireland and Wales); SCO41079 (Scotland)