Stories from carers

Real life stories from carers

The thought of having just 24 hours relief had been the light at the end of the very dark tunnel. The threat of losing it tipped me completely over the edge...


Read first hand stories from carers who have reached breaking point and see how vital these services really are.

To share your experiences of short breaks with Mencap, please email

Nicola’s story

Both my children have severe learning disabilities. My daughter Chloe is 18 and has Angelman syndrome, no speech, delayed physical and mental development, severe sleep disturbances and epilepsy. My 13-year-old son Kieran has cerebral palsy, no speech and epilepsy.

Alf's story

Great-grandfather-of-four Alf is 91and cares for his 59-year-old son Keith, who has cerebral palsy and a learning disability.

Jeanette’s story

I am a full-time carer to my 27 year old son who has Down's syndrome and a severe learning disability. I am worried that without a bit of extra help things could reach crisis point.

Gail’s story

From the age of two my son didn’t sleep for more than two or three hours a night. I’m told that sleep deprivation is used as a form or torture and I felt like I was being tortured every day.